A Day In The Life With Multiple Sclerosis

A Day In The Life With Multiple Sclerosis

Multiple Sclerosis (MS) can make the most fundamental daily tasks seem monumental. It can be a profoundly isolating experience, whether you live alone or with a family, feeling trapped in your own body. 

Anna*, a client of ours, generously agreed to give us a glimpse at what her day-to-day experience with Relapsing-Remitting MS (RRMS) was like before she applied for long term disability benefits. A 46-year-old 5th-grade teacher at a local public school, she lived with her husband and just recently sent her twin sons off to University. 

We met Anna six months after she recorded this flare-up, when her symptoms simply become too much to take. She was denied disability benefits, and we are currently working to win her case.  

This was what a typical day in Anna’s life during a flare-up looked like, while she was still able to work. 

6:00 a.m.

I have to get up early, especially if I’m having a flare-up. Thankfully, right now my flare-up is relatively mild, but there’s really no telling. So for the last few days, I’ve had some pretty serious fatigue, hence having to work on getting up as early as possible. I’ve also had some tingling and numbness in my left arm. Thankfully, I’m a righty! 

Bill, my husband, makes me coffee every morning, like clockwork. He makes it the best, too, so I’m thankful I don’t have to struggle with the machine, particularly on bad days. He works from home so he helps me get ready for the most difficult mornings, like this, by helping me get my things ready before I have to leave, or helping me get dressed if it’s particularly bad.

8:00 a.m.

Class starts at 8:30 a.m., so I like to get here a little while before the kids come in so I can get organized and situated for the day. It’s a lot of work trying to wrangle a bunch of 10- and 11-year-olds, but I have an amazing class this year. I’m really lucky. They take turns writing for me on the board if it’s my right hand that’s acting up, and always ask questions if they have them. 

11:30 a.m.

Since I’m having a flare-up, I’m definitely going to be taking my lunch break in the teacher’s lounge. I like to be around the other adults in case I need help with anything. So far, though, the only help I need is making another cup of coffee, my last of the day or I won’t sleep tonight. My left hand is getting a bit worse so I can’t hold the tin properly. This also gives me the opportunity to lie down for a short nap before class starts again. 

6:00 p.m.

After I get home from work, Bill and I like to go for a short walk. Just something around the block. It’s so important to exercise as much as possible with MS, even if I’m having a bad few days. Just have to try. After that, we’ll usually cook together, eat an early dinner, and then I like to get as much as possible ready for the next day. The less there is for me to do in the morning, the better! 

When she was first diagnosed with MS, Anna’s symptoms and flare-ups were more manageable. Now, it seems to be taking more effort to recover from each individual attack, meaning she needs to spend more time on recovery. She applied for long-term disability benefits but was denied because the insurance company said “you have been working with MS for all these years, what’s changed?  We think you can still work.” Her husband, Bill, helped her to find the strength to fight the insurance company and put her in touch with us to help contest her denied claim. 

“The entire Share Lawyers team is just incredible,” Rowan said. “Often with MS, people don’t think there’s anything wrong with you. I may look fine, but there’s so much else going on. Everyone at Share Lawyers understands this without me having to explain a single thing. I feel seen, heard, and believed, which helps give me the energy I need to keep fighting.” 

Thankfully, we are able to build a case to help Anna get the benefits she deserves.

*Please note that all names and identifying details have been changed to protect the confidentiality of all involved. 

Has your long-term disability claim been denied? Contact Share Lawyers and put our experience to work for you. We have recently settled cases against Great-West Life, Desjardins, Manulife, RBC Insurance, Sun Life, and many more. We offer free consultations and there are no fees unless we win your case. Find out if you have a disability case.